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dc.contributor.authorJohnson, M
dc.contributor.authorAllgar, V
dc.contributor.authorMacleod, U
dc.contributor.authorJones, A
dc.contributor.authorOliver, S
dc.contributor.authorCurrow, David Christopher
dc.date.accessioned2016-10-26T00:03:06Z
dc.date.available2016-10-26T00:03:06Z
dc.date.issued2016
dc.identifier.citationJohnson MJ, Allgar V, Macleod U, Jones A, Oliver S, Currow D. Family Caregivers Who Would Be Unwilling to Provide Care at the End of Life Again: Findings from the Health Survey for England Population Survey. Thompson Coon J, ed. PLoS ONE. 2016;11(1):e0146960. doi:10.1371/journal.pone.0146960.en
dc.identifier.issn1932-6203
dc.identifier.urihttp://hdl.handle.net/2328/36477
dc.descriptionThis is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.en
dc.description.abstractBackground Family caregivers provide significant care at the end of life. We aimed to describe caregiver characteristics, and of those unwilling to repeat this role under the same circumstances. Methods Observational study of adults in private households (Health Survey for England [HSE]). Caregiving questions included: whether someone close to them died within past 5 years; relationship to the deceased; provision, intensity and duration of care; supportive/palliative care services used; willingness to care again; able to carry on with life. Comparison between those willing to care again or not used univariable analyses and an exploratory multiple logistic regression. A descriptive comparison with Health Omnibus Survey (Australia) data was conducted. Findings HSE response was 64%. 2167/8861 (25%) respondents had someone close to them die in the previous 5 years. Some level of personal care was provided by 645/8861 (7.3%). 57/632 (9%) former caregivers would be unwilling to provide care again irrespective of time since the death, duration of care, education and income. Younger age (≤65; odds ratio [OR] 2.79; 95% CI 136, 5.74) and use of palliative care services (odds ratio: 1.95, 95% CI: 1.09, 3.48) showed greater willingness to provide care again. Apart from use of palliative care services, findings were remarkably similar to the Australian data. Conclusions A significant group of caregivers would be unwilling to provide care again. Older people and those who had not used palliative care services were more likely to be unwilling to care again. Barriers preventing access for disadvantaged groups need to be overcome.en
dc.language.isoen
dc.publisherPublic Library of Scienceen
dc.rightsCopyright © 2016 Johnson et alen
dc.titleFamily Caregivers Who Would Be Unwilling to Provide Care at the End of Life Again: Findings from the Health Survey for England Population Surveyen
dc.typeArticleen
dc.identifier.doihttps://doi.org/10.1371/journal.pone.0146960en
dc.rights.holderThe Authorsen
dc.rights.licenseCC-BY


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